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Chronic Illness Literacy

Important Questions to Ask Your Doctor

A practical list of questions to help you advocate for yourself in appointments

Medical appointments can feel rushed. You forget what you wanted to ask. The doctor uses terms you don't understand. You leave with more questions than answers.

Having a list of questions ready helps you make the most of your time and advocate for your health.

Before You Go

Prepare

  1. Write down your questions - Don't rely on memory
  2. List your symptoms - When they started, how often, what makes them better/worse
  3. Bring your medications - Or a list including dosages
  4. Bring someone with you - They can take notes and remember what was said
  5. Bring your medical records - If seeing a new doctor or specialist

Set an Intention

What do you most need from this appointment?

  • Understand a diagnosis?
  • Get symptom relief?
  • Explore treatment options?
  • Get a referral?

Knowing your priority helps you stay focused.

Questions About Diagnosis

Understanding What's Wrong

  1. "What do you think is causing my symptoms?"
  2. "Can you explain my diagnosis in plain language?"
  3. "How did you arrive at this diagnosis?"
  4. "Are there other conditions that could cause these symptoms?"
  5. "Do I need more tests to confirm this?"

Understanding Severity

  1. "Is this condition acute (short-term) or chronic (long-term)?"
  2. "How serious is this?"
  3. "What's the typical progression?"
  4. "What happens if this isn't treated?"
  5. "Will this affect my life expectancy?"

Understanding Cause

  1. "What caused this?"
  2. "Is this genetic? Could my family members have it?"
  3. "Could this have been prevented?"
  4. "Are there risk factors I should know about?"

Questions About Testing

Before the Test

  1. "Why do I need this test?"
  2. "What are you looking for?"
  3. "How accurate is this test?"
  4. "Are there risks or side effects?"
  5. "How should I prepare?"
  6. "How much does it cost?" (if relevant)
  7. "Is this covered by insurance?" (if relevant)

After the Test

  1. "What do these results mean?"
  2. "Are these results normal or abnormal?"
  3. "What happens next based on these results?"
  4. "Should I be retested? When?"

Questions About Treatment

Understanding Your Options

  1. "What are all my treatment options, including doing nothing?"
  2. "What do you recommend and why?"
  3. "What are the risks and benefits of each option?"
  4. "What happens if I don't treat this?"
  5. "Are there newer treatments I should know about?"
  6. "How successful is this treatment typically?"

About Medications

  1. "What is this medication for?"
  2. "How long will I need to take it?"
  3. "What are the side effects?"
  4. "What should I do if I experience side effects?"
  5. "Are there interactions with my other medications?"
  6. "Should I take this with food?"
  7. "What if I miss a dose?"
  8. "Is there a generic version?"
  9. "How will we know if it's working?"
  10. "Can I stop this on my own or do I need to taper?"

About Procedures or Surgery

  1. "Why is this procedure necessary?"
  2. "What exactly will be done?"
  3. "How long does it take?"
  4. "What kind of anesthesia will be used?"
  5. "What are the risks?"
  6. "What's the recovery time?"
  7. "What should I expect after?"
  8. "When can I return to normal activities?"
  9. "How many times have you done this procedure?"

Questions About Prognosis

What to Expect

  1. "What does the future look like with this condition?"
  2. "Will I get better, worse, or stay the same?"
  3. "What's the typical timeline?"
  4. "What symptoms should I watch for?"
  5. "When should I be concerned and call you?"
  6. "Are there warning signs of complications?"

Quality of Life

  1. "How will this affect my daily life?"
  2. "Can I still work/exercise/travel?"
  3. "Are there activities I should avoid?"
  4. "What lifestyle changes should I make?"
  5. "What can I do to help myself?"

Questions About Specialists and Referrals

  1. "Do I need to see a specialist?"
  2. "What kind of specialist?"
  3. "Why are you referring me?"
  4. "What should I expect from that appointment?"
  5. "Will you coordinate with them?"
  6. "Do I need a referral letter?" (insurance)

Questions About Follow-Up

  1. "When should I come back?"
  2. "What should I do between now and then?"
  3. "How will we track progress?"
  4. "What should I monitor at home?"
  5. "When should I expect results?"
  6. "How will you contact me with results?"
  7. "Who do I call if I have questions?"
  8. "What's the after-hours protocol for emergencies?"

Questions About Cost

Don't be embarrassed to ask about money:

  1. "How much does this cost?"
  2. "Is this covered by my insurance?"
  3. "Are there less expensive alternatives?"
  4. "Are there payment plans?"
  5. "Is there a generic option?"
  6. "Are there assistance programs?"

Advocating for Yourself

If You're Not Getting Answers

  • "I still don't understand. Can you explain it differently?"
  • "Can you write that down for me?"
  • "Can you draw a diagram?"
  • "I'd like a second opinion. Can you help me with that?"

If You're Dismissed

  • "I feel like my concerns aren't being heard."
  • "These symptoms are significantly affecting my life."
  • "What else could we look into?"
  • "I'd like this documented in my chart."

If You Disagree

  • "I'm not comfortable with that approach. What are other options?"
  • "Can we discuss the risks and benefits again?"
  • "I'd like to think about this before deciding."

Bringing Your List

At the start of the appointment, say: "I have several questions I'd like to make sure we cover today."

Hand your list to your doctor or nurse. This helps them budget time and prioritize what's most important.

After the Appointment

Document Everything

Within 24 hours, write down:

  1. What was said
  2. The plan
  3. Next steps
  4. New questions that came up

Follow Through

  1. Fill prescriptions
  2. Schedule tests or follow-ups
  3. Make lifestyle changes discussed
  4. Reach out with questions if needed

When to Get a Second Opinion

Consider a second opinion if:

  • The diagnosis is serious or life-changing
  • Treatment involves major surgery or risk
  • You're not comfortable with the recommendation
  • Your condition isn't improving with treatment
  • You feel dismissed or not heard

You have the right to a second opinion. Most good doctors will support this.

Your Rights as a Patient

You have the right to:

  • Ask questions
  • Understand your diagnosis and treatment
  • Refuse treatment
  • Get a second opinion
  • Access your medical records
  • Be treated with respect
  • Make decisions about your own care

Remember

You are the expert on your own body. Your doctor is the expert on medicine. Together, you make the best decisions about your health.

Don't be afraid to speak up, ask questions, and advocate for yourself.


This resource is for educational purposes. The specific questions you ask should be based on your individual health situation.

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Important Questions to Ask Your Doctor | Goodyear Foundation | Goodyear Foundation